Further to publishing the independent review of palliative care services earlier this year, work has been progressing across the four boroughs to look at how we address the challenges and inequalities highlighted in the report. and develop services in line with the recommendations. Feedback from staff and patients identified that palliative and end of life care services could be improved and made more accessible to everyone; with less than half of patients with an expected death in contact with palliative care services.
The ‘Call for Evidence’, which was responded to by over one hundred individuals, took place earlier this year as part of the review. It gathered the views of patients, families, carers, staff and local people who shared their experience of the services. Our aim is to continue to work collaboratively with local people to produce a proposal for a new model of care, for specialist palliative care services within the community.
The new model of care aims to meet the following requirements:
- Care is delivered in the most appropriate place at the right time, by the right clinician.
- Services deliver high quality, effective, best practice care.
- All patients have equal access to services and an improved, less fragmented experience of care.
- Patient choice is central to the way care is planned and managed.
- Staff enjoy working within the local system and feel supported in their work.
- The system is financially sustainable in the medium and longer term.
We need to recognise that specialist palliative care is by its nature a specialism that should be carried out in the appropriate environment (recognised hospice, hospital or in a patient’s usual place of residence) by an expert team, which has the requisite skills and organisational arrangements to enable the provision of support to people in need of wherever they are, with access to timely and on-going expert assessment, advice and care.
Patient & public involvement
Patient & public palliative care working group
With this in mind we would like to invite people to participate in the on-going development of this work by joining, “The patient & public palliative care working group’, which will meet monthly. This will work closely with the Clinical Reference Group, a group of clinicians, palliative care service and commissioning staff responsible for designing the model of care.
Palliative care is the active, holistic care of patients with advanced progressive illness. Management of pain and other symptoms and provision of psychological, social and spiritual support is essential. This is a complex subject and one which naturally evokes strong and sometimes unfamiliar feelings. The group will be sensitive to this and aim to create an environment which is supportive whilst welcoming productive discussion.
We would like to create a group that is representative of the local boroughs, if you are interested in participating please see further information below. We are seeking people with or without experiences of palliative care services. Every view and experience is valued and welcomed.
Please complete and return the forms above to email@example.com by 18 September 2019 or send freepost to: FREEPOST: HEALTHIER NORTH WEST LONDON.
If you have any further questions please contact our project team at firstname.lastname@example.org
Public workshops: Planning services together
In addition to the above working group, public workshops will be taking place this Autumn. The working groupandpeople from each borough will be invited to join health care professionals and staff from our services in a development session on the future model of care.
The aims of the workshops are to:
- Bring patients, clinicians, commissioners and providers together collaboratively to discuss the theme of each workshop.
- Share & understand patient & families experience of using local services.
- Use this information to co-produce a new specialist palliative care model within the community for Brent, Hammersmith & Fulham, Kensington & Chelsea and Westminster.
WORKSHOP 1, Theme for discussion ‘Access to services’– 30th September, Wembley, 6-8pm - Register to attend
WORKSHOP 2 – Theme for discussion ‘Care’ - 7th October, Hammersmith & Fulham, - Register to attend
WORKSHOP 3 – Theme for discussion ‘Aftercare & bereavement’-24th October, North Kensington - Register to attend
More details for each workshop to follow.
Update on the Pembridge in-patient unit
The Pembridge Inpatient service currently continues to remain suspended for admissions, until further notice. A decision has not been made at this point on the future of the Inpatient unit. It will however be considered as part of the future service model.
If you would like to join our mailing list to be the first to hear the latest news and developments with this work, please email: email@example.com.